Do you see these hands? These are the hands of a life that is the absolute reservoir for love. Each time you are in the presence of these dainty fingerprints, you know a little more about gentle. You feel grace surrounding you, too.
These are the hands of my niece, Mallory. And I am asking for your hands to help her.
I've written about her birth story here. And when I first met this precious life here. I've written a little more about the beginning stage of her diagnosis story here. And then again here about the continued journey for Mallory's diagnosis. But this post finds me lifting these precious hands up now more than ever.
Mallory has a diagnosis. This diagnosis is real and leaves our family to do nothing more than just exactly what the tiny heart behind those hands above does every single day: LOVE.
Mallory has been diagnosed with Niemann Pick Type C. This is a very rare fatal genetic disorder. I held my breathe when I typed that sentence. Knowing the reality of Mallory's life brings me to a place of absolute heart break swirled with huge emotions of anger and sadness.
I don't want my niece to endure this disease. I don't want her sister, Mollye,to watch this disease slowly take her little sister either. I want Mallory here. I want her healthy. I want her happy.
And it is only through prayer that I find a sense of peace for God's will on this precious life. It is in the one-to-one talks with my savior that I am reminded she knows happy. That Mallory knows love. Perhaps even more intimately than humans with a complete bill of health walking this earth.
Mallory's life is not about the quantity. It's everything about the quality. She is a beautiful reminder of what we all should do. To give out all that we have everyday that we have it. Spreading love & hope without boundaries concerning ourselves only with the wonderful gift of being present.
Mallory's birthday is February 28th. She will be three this year. And, believe it or not, February 28th is also nationally recognized as Rare Disease Day. Mallory's parents have organized a fundraiser to increase the awareness of rare diseases as well as raise money to purchase handicapped accessible playground equipment for the local playground in their town. The park is called Adventure Mountain which the girls love to frequent.
They are taking orders for t-shirts with the proceeds to go towards purchasing this equipment.
Youth Sizes XS (2-4), SM (6-8), MED (10-12), LRG (14-16), XL (18-20) Adult Sizes S-XXXL Long Sleeve (LS) Not Available In Youth
Color Choice G (Lime), P (Cyber Pink), B (Heather Black)
Short Sleeve $15 Long Sleeve $20
Payment methods: Cash, Checks (Go, Mallory. Go.), or Paypal
For ALL orders, please email: firstname.lastname@example.org
Include: Youth or Adult size, color choice, long or short sleeve, total cost, preferred payment method, contact phone number
*Also, if you would like a t shirt order form for your office, please email a request. For large groups such as schools or our wonderful rehabilitation clinic, it will be better to do one document/sign up sheet. This will also make delivery easier.
Kim and Adam are also organizing a silent auction to assist in their fundraising. It is here that I am asking for your help. Please order a t-shirt in honor of my niece. If you have an item to donate for the silent auction, I would be honored for you to be a part of this celebratory fundraiser for Mallory's birthday & Rare Disease Day. Please contact Ashley Nelson at email@example.com for silent auction donations.
If you would like to help volunteer your time on February 28th, please visit here to sign up.
Lastly, please share this information on any/all social media sites to help raise awareness and potential support for Mallory and their goal to install handicapped accessible playground equipment at their local park.
I am most honored and thankful to call this little girl my niece. She is such light & hope for me. Her place in my life reminds me to use my hands to love and to lift. Not a day goes by that I don't thank Him for the gift of her hands as they reach to touch so many with His love.
To learn more about Mallory's story and follow along with her journey, please join her Facebook page, Go, Mallory. Go. Thank you so much for your support.